I recently had an opportunity to speak to a wonderfully generous woman by the name of Elizabeth Joshi, whose son has a rare genetic disorder called Joubert Syndrome. As a result of this condition, he is visually impaired and cannot stand, walk, speak or eat solid foods.
According to Elizabeth, there are almost 7,000 known rare diseases and disorders, with most being genetic in nature and most affecting children.
The Global Genes Project (GGP) volunteer team is collecting blue jean/denim inspired bracelets for families living with rare diseases. The campaign is called “7,000 Bracelets for Hope.” To help raise awareness they are asking 7,000 jewelry designers, volunteers from the craft community and various artists to donate one bracelet to this campaign to show their support for kids living with rare disease, disorders or conditions. The bracelets will then be distributed to participating families in February 2011.
There are currently 60+ designers listed who are donating a denim inspired bracelet to this awareness effort. They are looking for any others who might be interested in participating.
Please feel free to share this information on your blog or other social networking sites and click here to jump over to their site to register and view the list of participating designers.